Cancer Update #2

Jan 26, 2015

Dear Friends, Family & Colleagues,

Thank you so much for all your warm and loving letters. Even though I’m not able to answer them all, please know that they hit the heart strings where they should. I feel very loved and supported. Many of you have asked for updates so I’ve put you on this list. If it is all too creepy and you don’t want these, please let me know. Some of you already know what is in this letter…

Well events are unfolding much more rapidly than I could have imagined. Fortunately my excellent colleagues at Humber stepped up to the plate very quickly to find a teaching replacement for me. It was good they moved so quickly because on Friday at 5:30 PM I received a call from my nephrologist saying that because of some dramatic test results, I needed to proceed immediately to Toronto General Hospital and be admitted. There was fear that the massive dumps of protein that the cancerous white blood cells are producing would further damage the kidneys and move me towards dialysis. They wanted to start me ASAP on steroids. So an hour and a half later I was sitting at the hospital waiting to be admitted.

It is now expected that I will be in hospital until the end of the week. Today I get passed from the nephrologists to the haematology team, as myeloma is a disease of the blood. They will do a bone marrow test soon to ascertain what flavour of myeloma I have. Then chemo will probably begin. Thus far the steroids have had the wonderful effect of diminishing the terrible bone pain I have been suffering in my foot, legs, hips and back. It is a great relief to be free of this pain, if only temporarily. Peter and others tell me that they can see the positive change in my face.

The challenges ahead are frightening, but I’m told that the particular hospitals I’m connected with in Toronto are very highly regarded for their myeloma research. Mostly, though I continue to feel held by all the love, support and clementines I have been receiving. I only wish they would let our dog, Rui, come to visit. Peter told me that twice Rui has jumped on the bed, moved the carefully placed dog cover and burrowed his head under my pillow. I feel missed!

As I said, things are unfolding rapidly – doctors, procedures and medications – as well as trying to understand how it all works. With all this going on, I don’t want more visitors right now. Peter and I have just had a huge renovation done on our house. We hope to be moving back in next week or so. Depending on how I feel, maybe I’ll be ready to receive more visitors once we are settled in at home. I’m also hoping to continue working on my current art project which looks now as if it is reshaping itself to encompass the cancer. I suppose this will also depend on how I am feeling once chemo starts.

Love (that most important of ingredients),

Diana

Cancer Update #1

Jan 21, 2015

Dear Friends and Family,

I think many of you know that I have been waiting to see a nephrologist as I’ve had some tests which point to kidney disease. Today I saw the nephrologist and my bad news just got a lot worse. It looks as though I am dealing with bone marrow cancer – myeloma. While I am about to embark on many tests to confirm this, the nephrologist said he was 90% sure that this is what we were looking at. I figure a specialist doesn’t sit in an office and say 90% bone marrow cancer unless that’s the story.

Bone marrow cancer is often caught first by nephrologists as kidney problems are one of the first places it is seen. Another major symptom is back pain and another is anemia. Those of you who see me here in Toronto know that I have started using a cane because my back pain has me almost immobile. I have also been suffering from extreme exhaustion.

The specialist has advised me to take a leave from my job effective immediately as I will be going through many medical tests and quite probably chemo. He is referring me to a haematologist as this is a cancer of the blood.

Peter was with me at the appointment today, and I feel held up and buoyed by his loving support through all of this. I’m guessing that many of you will write me  supportive letters for which I am glad; forgive me if I don’t get back to you right away. I’m so lucky to have such a loving and supportive community.

I have included many people on this list who didn’t even know about the kidney problem. A lot of this has happened very quickly. I’m so sorry that this is how you are learning about my health troubles, but I need you to know what is going on.

Love,

Diana